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“There used to be days that I didn’t feel like I could get through the day. I just wanted to cry and go back to bed.”
Only a decade ago, many doctors didn’t believe fibromyalgia was real — “hysterical” women were just imagining it. To this day, it is still misunderstood, and often misdiagnosed. Commonly characterized as a chronic pain condition, a growing body of evidence suggests that fibromyalgia is a complex neurological disorder. Beyond chronic pain affecting muscles and connective tissue, sufferers often complain of joint stiffness, chronic fatigue, insomnia, general weakness, headaches, digestive issues, anxiety, and cognitive issues (e.g., “fibro fog”).
According to the National Institutes of Health, more than 5 million Americans — mostly women — have fibromyalgia.
While the cause of fibromyalgia is widely debated, Dr. Ethan Russo, a prominent neurologist and pharmacologist who has dedicated much of his professional career studying cannabis and the endocannabinoid system, theorized that fibromyalgia could be related to Clinical Endocannabinoid Deficiency (CECD).
The endocannabinoid system is like the Internet of your body — a communications network facilitating communications between your brain, organs, connective tissues, glands, and immune cells. The primary goal of the ECS is homeostasis — helping your body maintain a stable internal environment.
When the endocannabinoid system is out of whack, health suffers. An imbalance can cause a whole host of issues affecting mood, sleep, gastrointestinal health, muscle spasticity, to name a few — symptoms that are also prominent among sufferers of fibromyalgia, thusly supporting Russo’s theory.
Hard to treat and impossible to cure, many sufferers are curious about whether cannabis can help treat their discomfort.
Robnett, who is also the founder and executive director of Colorado-based Cannabis Patients Alliance, was one such patient. Recalling how in 1987 a car accident triggered her fibromyalgia, she later learned that an endocannabinoid deficiency could be to blame. She fell to the floor and cried, but her sadness was swiftly replaced with anger. Recognizing cannabis might be able to help, she asked, “How could the one thing that could supplement what my body wasn’t making [is something] the government could tell me I can’t have?”
For years Robnett took doctor-prescribed pharmaceuticals, but she detested the side effects and was concerned about drug interactions. “In 2009, I started medical marijuana. By 2011, I had quit all of my pharmaceutical medications and now use cannabis exclusively,” she explained.
Robnett said that at first it took her a bit of trial-and-error, but it didn’t take long for her to become convinced cannabis was preferable to pharmaceuticals. “From season to season, even day to day, the severity of symptoms can change because of the weather, stress, or hormones,” Robnett said. “Cannabis allows me to self-titrate. By being able to vary how I consume and types of strains, I can more effectively treat the symptoms.”
At night, Robnett medicates with an edible. Because edibles can take a bit to kick in, she begins her routine by vaporizing with an indica strain which quickly enters the bloodstream and immediately provides relief. While vaporizing works quickly, it doesn’t last through the night. “The edible takes much longer to affect me than vaporizing, but lasts much longer, and I can sleep through the night,” she said. “Getting a good night’s sleep helps keep my symptoms under control the next day.”
During the day, she’ll use something higher in CBD and lower in THC to minimize psychoactive effects while alleviating her symptoms. Chronic fatigue is also a common symptom, and Robnett said the High CBD counters the fatigue, giving her energy to get through the day.
The full article can be found here
Do any of you suffer from this condition? We would love to hear your stories and if ditching the meds for cannabis has helped you through the constant battle of pain each day.